Recent Updates

This spring has brought many changes. Chris and Amy have been adapting their home and their lives to make it more handicap accessible. They have added a chair lift for the inside, a ramp for the front door. An outside chair lift is being constructed to accommodate the customized motorized wheel chair that has been ordered.

The Stone’s have purchased a handicap accessible Caravan to make travel easier and even possible. Chris has been borrowing a motorized wheel chair, while his is being made. This has improved travel around the yard and mobility in the house, making it easier to get things up high and play in the yard with Christopher.

Chris recently made a visit to the ALS clinic in Boston. They concluded that his lung capacity was at 57%, he is still going to Physical therapy twice a week but he is starting to have a very hard time transferring from one location to another. He is starting to loose his upper body strength, the bed was lowered but a hospital bed will be set up soon because he is no longer able to roll from one side to another. On the good side the blood clots are breaking up and the kidney pain is gone.

In the last month, family and friends participated in the ALS walk in Chelsea MA. It was a beautiful day and beautiful location. There was a great deal of money raised for ALS research and living facility.

Now that Amy has taken part in the walk she has set her sights on completing a 5K road race this September. She has been getting up early before work and gradually training. This is proof that anything is possible!!

A CNA has been hired and works with Chris about 5 mornings a week, relieving some of the stress of the Stone Family. A hospital bed has been donated by the Massed family, along with many generous monetary donations in honor of their mother Mrs. Marianne Massed. All of their thoughts, prayers, and generosity have been greatly appreciated.

The next month will be an exciting one for Chris. He will be traveling to Maine and Canada for two hunting with his father. They will spend 2 weeks enjoying the outdoors. At the end of June, Amy and Chris, along with Amy’s family will be traveling to Wyoming to celebrate Amy’s cousin’s wedding.

While Amy continues to work full time and juggle her ever changing life, Little Christopher will be forgoing day care and spending the summer in Warren. Hopefully giving Amy and Chris some much need financial relief and time.

Each day brings new challenges but the Stone Family is adjusting. They recently held a cookout for family and friends. The weather held out, the kids and adults enjoyed the fire, the ribs were delicious, it was a great celebration and much needed party.